Our aim was to develop feasible and effective methods that would allow practitioners to embed the patient voice in routine care.

The programme of research was developed to address the deficit of evidence about patient involvement in research and to design, develop and evaluate innovative approaches to engage patients in preventing patient safety incidents (PSIs) and protecting themselves from unintended harm in collaboration with health professionals. This programme of research emerged from a common chorus of requests from the regional clinical networks of the Yorkshire Quality and Safety Research group: how can we involve patients in improving patient safety? The paradox for the development of a programme centred on patient involvement was that, when we consulted with our patient and public panels, there was very little understanding about patient safety and general surprise that health services were unsafe. Although intentions are well-meaning, the methods used – patient representatives, patient surveys and patient interviews – are often tokenistic, unreliable and unsustainable. However, busy health professionals frequently struggle to achieve real involvement in practice.

Patient involvement has become a universal mantra in health services.

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